Little Ping Ann has grown up healthly!

Teh Ping Ann, who suffers from the rare congenital thrombocytopenia-SLFN14 mutation gene disease, is celebrating the completion of her bone marrow transplant one year ago. Recent tests confirmed that her full blood cell count has returned to normal. Although she still experiences some aftereffects of brain hemorrhage, doctors have assured that she can continue to grow up healthily.

Our foundation first met Ping Ann in 2021 when she was only 9 months old and diagnosed with the rare genetic disease. Over the past two years, she has faced many challenges and struggles during her treatment journey. However, she has ultimately succeeded in overcoming these difficulties and crossing each hurdle in her life.

"Ping Ann... so pretty!" Three-year-old Teh Ping Ann is now starting to speak, mimicking her parents' words and enjoying taking photos. With her mother's styling, she wears beautiful dresses and poses like a "little princess" in front of the camera.

Watching little Ping Ann learn to walk, talk, and grow up slowly like other children brings deep joy and relief to her father, Teh Yew Lim (40), and mother, Zen Meilani (33). They are not only grateful for the professional treatment provided by the medical team at the University Hospital, but also wish to express their thanks to the kind-hearted people who have blessed them. They also extend their gratitude to the ONE HOPE CHARITY foundation for their assistance in successfully raising the necessary medical expenses, which has become the strength that supports them to persevere.

【The journey of Ping Ann's battle against illness】

Little Ping Ann, born in March 2021, requires platelet transfusions at the hospital every week. However, prolonged transfusions lead to platelet rejection in her blood, necessitating a bone marrow transplant as the only solution. Ping Ann shares the same condition as her brother, who passed away in 2019 due to a sudden brain hemorrhage, exhibiting symptoms such as widespread bruising and a lack of platelets in the body, resulting in difficulty clotting. After genetic testing, doctors discovered that they both suffer from a rare genetic disease.

With the assistance of One Hope Charity, Ping Ann's parents successfully raised the necessary medical expenses in December 2021, allowing them to take Ping Ann to Singapore for a bone marrow transplant surgery. However, just before the transplant, she experienced a severe brain hemorrhage, requiring two emergency surgeries to save her life. The brain hemorrhage has affected the function of her right side and caused partial vision loss in her left eye, but her intellectual development remains unaffected.

In March 2022, Ping Ann underwent her first bone marrow transplant, but three months after receiving a stem cell transplant from her father, she developed persistent fever and bacterial infection. Despite receiving immunosuppressive drugs to prevent rejection, the transplant was ultimately declared unsuccessful.

In April 2023, Ping Ann was given a second chance for a bone marrow transplant. Under the care of the pediatric hematology team at the University Malaya Medical Centre (UMMC), she underwent a successful second transplant. Her aunt, Teh Ghee Lim, served as the donor, marking Malaysia's first successful case of a non-direct relative bone marrow transplant.

Led by Professor Hanny, the pediatric hematology team at UMMC administered special medications and performed plasma exchange for Ping Ann. Her aunt's bone marrow was successfully implanted into her body. Twenty-five days after the transplant, Ping Ann's platelet count had risen from single digits to triple digits, indicating a favorable recovery.

【Insight】

Ping Ann's resilience and courage remind us that miracles of life are always present in everyone's efforts and perseverance. We sincerely wish Ping Ann a healthy, joyful, and prosperous future ahead.